The Michael Covert Epidermolysis Bullosa 5K is a Running race in Columbiana, Ohio consisting of a 5K.
All proceed go to DEBRA, the only non-profit organization to help those who suffer from Epidermolysis Bullosa
Epidermolysis Bullosa (EB) - "The Worst Disease You've Never Heard Of."
Epidermolysis Bullosa, or EB, is a rare genetic connective tissue disorder that affects 1 out of every 20,000 births in the United States (approximately 200 children a year are born with EB). There is no treatment or cure. There are many genetic and symptomatic variations of EB, but all share the prominent symptom of extremely fragile skin that blisters and tears from minor friction or trauma. Internal organs and bodily systems can also be seriously affected by the disease. EB isKeep Reading
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