Eye Love Logan 5K - Westminster, Colorado - Running

The Eye Love Logan 5K is a Running race in Westminster, Colorado consisting of a Kids Run/Fun Run and 5K.

Description
Join us in Westminster, CO as we support the fundraising efforts toward finding better treatments and a cure for RDH12 - a retinal degenerative disease.

This is a family friendly event and all encouraged to attend! Walkers, joggers, dogs and serious runners: all are welcome!

If you don't think you can do the 3.1 miles just come play, listen to music and browse the silent auction items. The bidding opens at 8:30 am and will end at 10:30am and winners will be announced.

If you can't make it the day of the event, please consider clicking on the donate button and donating to this cause that is near and dear to our hearts.

Why run or donate?
Our 6 year old son, Logan, and our 4 year old daughter, Zoe, were diagnosed with a rare genetic mutation that results in a progressive loss of vision called Lebers Congenital Amaurosis (LCA). Logan and Zoe's specific LCA was identified by the Carver lab at the University of Iowa as being caused from a mutation along the RDH12 gene. As of now, there is no known cure for LCA caused by the RDH12 gene and those with RDH12 deficiency eventually go blind, typically in their late teens to early twenties

There is currently nothing that can be done for someone that has this diagnosis, but there is hope for gene therapy, still currently ready to move to stage 1 clinical trials, if funds are dedicated to the cause.



Why support the RDH12 Fund for sight?

Since it's founding, the RDH12 Fund for Sight has enjoyed significant success and growth. Our group now includes 20 children from 17 families and to date, has raised 1 million dollars for RDH12 research to help all of the children with RDH12 LCA be cured of blindness.

With funds raised, the RDH12 Fund for Sight has awarded two grants to academic researchers, Jean Bennett at the University of Pennsylvania and Debra Thompson of the University of Michigan. With these funds, they have successfully developed a gene therapy for RDH12 LCA. This work could potentially be available for use by our children in 1 short year. But in order to realize this goal, the foundation must find a way to continue to provide Dr. Thompson with the resources necessary to push this cure across the finish line.



The RDH12 Fund for sight is a registered 501(3)(c) charitable foundation so all donations to the fund are tax deductible. The Fund does not pay administration fees nor maintain any employees which means all money raised goes directly to a cure. It is entirely supported by the parents of children with this disease who volunteer their time and love their children.

For more info on RDH12 see the website at: RDH12.org